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Colins life  

Dear Friend
Author unknown

Go ahead and mention my child, the one that died, you know.

Don't worry about hurting me further, the depth of my pain doesn't show.

Don't worry about making me cry, I'm already crying inside.

Help me to heal by releasing the tears that I'm trying to hide.

I'm hurt when you just keep silent, pretending she didn't exist.

I'd rather you'd mention my child, knowing that she has been missed.

You asked me how I'm doing, I say "pretty good" or "fine",

but healing is something on-going, I feel like it will take a lifetime.

 

 

The mention of my child's name
Author unknown

"The mention of my child's name
May bring tears to my eyes,
But it never fails to bring
Music to my ears.

If you are really my friend,
Let me hear the beautiful music of her name.
It soothes my broken heart
And sings to my soul."

Please, don't ask me
Author: Rita Moran

Please, don't ask me if I'm over it yet
I'll never be over it
Please, don't tell me she's in a better place
She isn't with me
Please, don't say at least she isn't suffering
I haven't come to terms with why she had to suffer at all
Please, don't tell me you know how I feel
Unless you have lost a child
Please, don't ask me if I feel better
Bereavement isn't a condition that clears up
Please, don't tell me at least you had her for so many years
What year would you choose for your child to die?
Please, don't tell me God never gives us more than we can bear
Please, just tell me you are sorry
Please, just say you remember my child, if you do
Please, just let me talk about my child
Please, mention my child's name
Please, just let me cry.

Death Is

Death is nothing at all.
I have only slipped away into the next room.
I am I, and you are you.

Whatever we were to each other, that we still are.
Call me by my old familiar name,
speak to me in the easy way which you always used.
Put no difference in your tone,
with no forced air of solemnity or sorrow.
Laugh as we always laughed at the little jokes we enjoyed together.
Play, smile, think of me, pray for me.
Let my name be ever the household word that it always was,
let it be spoken without effort, without the trace of a shadow on it.

Life means all that it ever meant.
It is the same as it ever was; there is unbroken continuity.
Why should I be out of mind because I am out of sight?

 

 


Some select poems......  
"When Time Stands Still"
by Debbie Hilton-Kamm

It starts with news impossible to hear
It conjures up your every fear
It's when they say your child is ill
That's when time just stands still

In that moment, that suspended time
A thousand thoughts run through your mind
Will he ever laugh and play?
Will I see his wedding day?

All the planning, the hopes and dreams
Are put on hold -- just what does this mean?
His crib is empty, his toys alone
For now, the hospital will be his home


This is a place where time stands still
Where the void's too large to ever fill
For in a hospital's intensive care
Children lie, some unconscious, some aware

And time is measured by a new yardstick
Every second marked by a monitor's tick
Noting every breath the child takes
And every beat his tired heart makes

Just a moment of watching a child writhe or strain
In sedated confusion, or fear or pain
Or pleading for a drink to which you can't oblige
Seems like far more than an entire lifetime


And the children who live far too long
In hospital gowns, trying to be strong
They have old souls, that's what they say
Because in each moment they've lived a thousand days

For those who say time goes by too fast
Sit with an ill child, and see just how slowly time can pass

A child is a gift that comes with many moments of love.
But what you think you'll hold for a lifetime sometimes leaves us for the Heavens above.


"Not Enough Years....."
author unknown

I think back at the moments
Precious moments we shared with you.
I think of the times that we saw you smile.
There's nothing to compare it to.

Every moment we shared with you was a joy!
So much more than you could know.
Just to hear each time your heart would beat...
Meant one more beat to help you grow!

Tonight, we sit & look thru pictures
holding onto every single minute.
We look back & long for more time in life with you.
For more life while you were in it.

I see others around me & know that they
understand exactly how I feel.
For every moment I live without you
is a moment too painfully real.

So, I sit tonight longing to hold you.
I just can't hold back my tears.
There were many moments with you...
Just not enough years.........
"If I could have a lifetime wish,
A dream that would come true,
I'd pray to God with all my heart
for yesterday and you.
A thousand words can't bring you back;
I know because I've tried.
And neither will a million tears,
I know because I've cried.
You left behind my broken heart
And happy memories too.
I never wanted memories,
I only wanted you."

While We Are Apart

While We Are Apart I Will Hold You
In My Heart and Never Let You Go
Distance may separate us,
But my heart will never let you go;
For I carry a part of you...
With me always;

It keeps me going through each day...
It brings a smile to my face...
to just hear your name...

It is a part of my dreams,
That I live for and cherish;
That part is my wish, my only one,
To see you again soon;
I know that wish will someday come true,
But for now I will hold in my heart;
The memory and love I have for you...

Author Unknown


Colin's Angel Friends  
 
Liam Kelley -
October 2003 to September 2004
http://www.lidsbyliam.org/ - This orginazation was made by close friends we made in the hospital during Colins 1st stay at CHOP. Liam turned 1 in October, but sadly, celebrated in Heaven. Liam lost his battle with CHD, waiting for a heart transplant. He was too sick and weak to get it for the last few months. His family, Heather and Chris (mom and dad) are all very inspiring. They are beautiful people, and got to hold an angel for a few months. Liam is now playing with Colin in heaven. (this is part of why Jason's story inspired me so much- above)

Quinn Mazfield Keller
10.21.2000 - 6.9.2003
http://www.igps.org/echota/quinn/story.htm - Quinn such a cute little boy. I had the chance of talking with his mom a few times, and I can see the love. He was a special little boy, with another battle with CHD. Check out his story, and super cute pictures.

HELPFUL WEBSITES  

http://www.cafepress.com/chdfamilies  - for famlies dealing with CHD
http://www.aplacetoremember.com/aptrfront.html - A nice store and rememberance website
http://www.richremembrances.com - some very nice products to remember a child
http://www.heavenlylights.homestead.com/poetrybylaura.html - Beautiful poems
 http://www.heartsofcourage.com/chd.html - CHD website
http://www.chdinfo.com/chdaware/ - useful info on CHD's and more about them.
http://www.babyheartspress.com/  = chd website
http://tchin.org - CHD website. More about CHD awareness day
http://www.heartcenteronline.com- CHD site
http://www.congenitalheartdefects.com/stats.html- CHD site


Merry 1st Christmas, Love Mommy and Daddy  

Missing You This Christmas

The winter cold surrounds me
The chill’s sinking to the bone
People are bustling all around me
Yet I still feel so alone
The carolers are singin’
Notes are dancing on the air
Lights everywhere are twinklin’
But my heart still feels so bare

Cause I’m missing you this Christmas
I feel so empty with you gone
I’m just going through the motions
Just trying to get along
There’s no joy left in the holidays
The season feels so wrong
Cause I’m missing you this Christmas
I’m so empty with you gone.

Stockings grace the fireplace
Gifts are wrapped under the tree
Cards are covering every space
With love from friends and family
But there’s no hope tonight for me
No warmth from the fire
No sweet Christmas Eve time dreams
Santa can’t bring my heart’s desire

Cause I’m missing you this Christmas
I feel so empty with you gone
I’m just going through the motions
Just trying to get along
There’s no joy left in the holidays
The season feels so wrong
Cause I’m missing you this Christmas
I’m so empty with you gone.


Merry Chistmas to all my family.........  

I see the countless CHRISTMAS TREES around the world below
with tiny lights like HEAVEN’S STARS reflecting on the snow.
The sight is so SPECTACULAR please wipe away that tear
for I am spending CHRISTMAS WITH JESUS CHRIST this year.
I hear the many CHRISTMAS SONGS that people hold so dear
but the SOUND OF MUSIC can't compare with the CHRISTMAS CHOIR up here.
I have no words to tell you of the JOY their voices bring
for it is beyond description to HEAR THE ANGELS SING.
I know HOW MUCH YOU MISS ME, I see the pain inside your heart
for I am spending CHRISTMAS WITH JESUS CHRIST this year.
I can't tell you of the SPLENDOR or the PEACE here in this place
Can you just imagine CHRISTMAS WITH OUR SAVIOR face to face.
I'll ask him to LIFT YOUR SPIRIT as I tell him of your love
so then PRAY FOR ONE ANOTHER as you lift your eyes above.
Please let your HEARTS BE JOYFUL and let your SPIRIT SING
for I am spending CHRISTMAS IN HEAVEN and I’m walking WITH THE KING.
~ by Wanda Bencke
© Copyright 1999


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