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Colins life
Dear Friend Author unknown
Go ahead and mention my child, the one that died, you know.
Don't worry about hurting me further, the depth of my pain doesn't show.
Don't worry about making me cry, I'm already crying inside.
Help me to heal by releasing the tears that I'm trying to hide.
I'm hurt when you just keep silent, pretending she didn't exist.
I'd rather you'd mention my child, knowing that she has been missed.
You asked me how I'm doing, I say "pretty good" or "fine",
but healing is something on-going, I feel like it will take a lifetime.
The mention of my child's name Author unknown
"The mention of my child's name May bring tears to my eyes, But it never fails to bring Music to my ears.
If you are really my friend, Let me hear the beautiful music of her name. It soothes my broken heart And sings to my soul."
Please, don't ask me Author: Rita Moran
Please, don't ask me if I'm over it yet I'll never be over it Please, don't tell me she's in a better place She isn't with me Please, don't say at least she isn't suffering I haven't come to terms with why she had to suffer at all Please, don't tell me you know how I feel Unless you have lost a child Please, don't ask me if I feel better Bereavement isn't a condition that clears up Please, don't tell me at least you had her for so many years What year would you choose for your child to die? Please, don't tell me God never gives us more than we can bear Please, just tell me you are sorry Please, just say you remember my child, if you do Please, just let me talk about my child Please, mention my child's name Please, just let me cry.
Death Is
Death is nothing at all. I have only slipped away into the next room. I am I, and you are you.
Whatever we were to each other, that we still are. Call me by my old familiar name, speak to me in the easy way which you always used. Put no difference in your tone, with no forced air of solemnity or sorrow. Laugh as we always laughed at the little jokes we enjoyed together. Play, smile, think of me, pray for me. Let my name be ever the household word that it always was, let it be spoken without effort, without the trace of a shadow on it.
Life means all that it ever meant. It is the same as it ever was; there is unbroken continuity. Why should I be out of mind because I am out of sight?
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Some select poems......
"When Time Stands Still" by Debbie Hilton-Kamm
It starts with news impossible to hear It conjures up your every fear It's when they say your child is ill That's when time just stands still
In that moment, that suspended time A thousand thoughts run through your mind Will he ever laugh and play? Will I see his wedding day?
All the planning, the hopes and dreams Are put on hold -- just what does this mean? His crib is empty, his toys alone For now, the hospital will be his home
This is a place where time stands still Where the void's too large to ever fill For in a hospital's intensive care Children lie, some unconscious, some aware
And time is measured by a new yardstick Every second marked by a monitor's tick Noting every breath the child takes And every beat his tired heart makes
Just a moment of watching a child writhe or strain In sedated confusion, or fear or pain Or pleading for a drink to which you can't oblige Seems like far more than an entire lifetime
And the children who live far too long In hospital gowns, trying to be strong They have old souls, that's what they say Because in each moment they've lived a thousand days
For those who say time goes by too fast Sit with an ill child, and see just how slowly time can pass
A child is a gift that comes with many moments of love. But what you think you'll hold for a lifetime sometimes leaves us for the Heavens above.
"Not Enough Years....." author unknown
I think back at the moments Precious moments we shared with you. I think of the times that we saw you smile. There's nothing to compare it to.
Every moment we shared with you was a joy! So much more than you could know. Just to hear each time your heart would beat... Meant one more beat to help you grow!
Tonight, we sit & look thru pictures holding onto every single minute. We look back & long for more time in life with you. For more life while you were in it.
I see others around me & know that they understand exactly how I feel. For every moment I live without you is a moment too painfully real.
So, I sit tonight longing to hold you. I just can't hold back my tears. There were many moments with you... Just not enough years......... "If I could have a lifetime wish, A dream that would come true, I'd pray to God with all my heart for yesterday and you. A thousand words can't bring you back; I know because I've tried. And neither will a million tears, I know because I've cried. You left behind my broken heart And happy memories too. I never wanted memories, I only wanted you."
While We Are Apart
While We Are Apart I Will Hold You In My Heart and Never Let You Go Distance may separate us, But my heart will never let you go; For I carry a part of you... With me always;
It keeps me going through each day... It brings a smile to my face... to just hear your name...
It is a part of my dreams, That I live for and cherish; That part is my wish, my only one, To see you again soon; I know that wish will someday come true, But for now I will hold in my heart; The memory and love I have for you...
Author Unknown
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Colin's Angel Friends
 Liam Kelley - October 2003 to September 2004 http://www.lidsbyliam.org/ - This orginazation was made by close friends we made in the hospital during Colins 1st stay at CHOP. Liam turned 1 in October, but sadly, celebrated in Heaven. Liam lost his battle with CHD, waiting for a heart transplant. He was too sick and weak to get it for the last few months. His family, Heather and Chris (mom and dad) are all very inspiring. They are beautiful people, and got to hold an angel for a few months. Liam is now playing with Colin in heaven. (this is part of why Jason's story inspired me so much- above)
Quinn Mazfield Keller 10.21.2000 - 6.9.2003 http://www.igps.org/echota/quinn/story.htm - Quinn such a cute little boy. I had the chance of talking with his mom a few times, and I can see the love. He was a special little boy, with another battle with CHD. Check out his story, and super cute pictures.
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[Total of 10 records]
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